It’s been a week since the surgery. I needed to wait this long to write anything, because once they took the bag off and removed the chemo port, I wanted to make sure my insides actually worked — they do, sort of — before I let myself say out loud that this chapter of my life is coming to an end.
That realization first started to sink in the night I got home — last Saturday — when I sat in the shower for nearly fifty minutes, completely unbothered. No fear of the bag getting too wet and falling off. No fear of the ostomy discharging mid-shower and what that cleanup looks like after — and I’ll let you use your imagination there, but it involves a fair amount of bleach on the shower floor. For fifty minutes, I just sat there and enjoyed a shower in a way I’m not sure I ever truly had before.
It’s a strange thing, learning what you miss most when something simple is taken from you without warning.
What I don’t think I’d fully appreciated before the bag was how much of your life quietly reorganizes itself around it. What you wear — black, always black. Whether you go out, and for how long, and how far from a bathroom. Whether you let people get close enough to notice. Whether you stop at the sauna you used to love, or the restaurant with the long wait, or the friend’s house where you’d have to explain. You don’t make one big decision to shrink your life. You make about four hundred small ones, and one day you look up and realize how much smaller it got.
So yes. Fifty minutes in a shower. That’s what this year came down to, at least in the beginning.
If this were a movie, that shower would have been some kind of sweeping visual metaphor — washing away the memories of the last year, strings swelling in the background. But this isn’t a movie, and honestly, I don’t want it to be. I don’t have a clean takeaway from all of this yet. I’m not sure I’m supposed to. But I do think whatever I’m meant to carry forward will become clear with time.
What I have found myself returning to are four personal truths — things I probably already believed somewhere deep down, but that this last year somehow pressed into permanence for me. They’re going to sound like fortune cookies. Some of them probably are. I’m sure I absorbed pieces of them from people smarter than me. But that doesn’t make them any less mine.
- You can’t live a great story and have an easy life.
- It’s an amazing privilege to complain about the life you begged God for when you were younger.
- Everything good in life lives on the other side of fear, embarrassment, or discomfort. Run to that side any chance you get.
- Always drink the good bourbon when you can. There is no reason to save it for a perfect moment that will never come.
Take from those whatever you’d like — or nothing at all.
I still don’t have a clear answer to what now? — and honestly, that’s equal parts terrifying and kind of thrilling, and I’m finding I’m okay with not knowing. I figure if I hold loosely to those four ideas, whatever comes next should be some kind of adventure. For now, I’m going to enjoy all the small things I had to give up when the bag went on: wearing something other than black, getting back to the sauna, and taking as many showers as my water bill will reasonably allow.
This is where this chapter ends — mostly. There are scans ahead, and cancer could come back. But that’s true for all of us in one way or another, so there isn’t much point in borrowing that worry today.
For now, it’s on to the next adventure. Thank you for reading this long cancer chapter, its been a heck of a story so far…