I’m finishing out the first week of this clinical trial, and for the most part I’ve been asymptomatic. They told me I might have high blood pressure, but since I have no idea what high blood pressure is supposed to feel like, I can’t tell if this low-grade headache is my sinuses or a side effect. Honestly, I haven’t even wanted to ask because I don’t think I really want to know. I’d rather assume it’s my sinuses and that it’ll go away. That feels like a better mindset anyway.
I think I need that mindset, too.
Ever since it became apparent that I still have cancer in me somewhere, my mind has started wandering into places I don’t consciously want it to go whenever I’m not focused on something important. My little sister would probably try to diagnose me with something beyond cancer, but I don’t think that’s what’s happening.
What I mean is this: if anything feels even slightly out of the ordinary, my brain immediately jumps to, “Is that the cancer?”
For the last couple of days, my left trap and upper back have been sore. When I wake up in the middle of the night because of a sharp pain there, my first thought—before I’m even fully awake—is that it must be cancer.
Tugboat is not at all happy when this happens.
I tend to jolt awake, and since he sleeps on the left side of the bed near my feet, he gets jolted awake too. I assume if he could talk, the glare I can feel him giving me in the dark would be accompanied by something like:
“Hey, dumbass. It’s not cancer. Two days ago you spent an hour pushing and pulling a sled behind the gym in the middle of a Texas summer without drinking enough water. You strained a muscle. Stop waking me up and go back to sleep.”
Since he can’t actually talk, he settles for huffing dramatically or occasionally snapping at the back of my feet under the covers before going back to sleep.
He’s probably right.
It’s highly unlikely this cancer is growing anywhere quickly, if at all. The whole point of this trial is to kill it, so assuming it’s already causing physical pain isn’t exactly the logical conclusion.
Unfortunately, logic doesn’t always get a vote.
My subconscious likes to throw these thoughts at me before I even have a chance to react, and that’s frustrating as hell.
I don’t have a great solution yet, but I’ve been experimenting.
I tried reading before bed, but that doesn’t work because the book I’m currently obsessed with is also incredibly depressing. I should probably switch to something lighter, but it’s just too good to put down.
I used to watch random YouTube videos, but last week the algorithm decided to be an asshole.
It served up one of my favorite videos ever, made by some friends of mine more than a decade ago, called A Tribute to Denali. I highly recommend it, even though I’d completely forgotten what it was actually about.
It’s a love letter to a guy’s dog.
What I forgot was that the guy in the story—Ben—also had colon cancer.
It’s funny what you do and don’t remember about something until you can relate to it yourself. Everyone remembers the dog because everyone can relate to loving a dog. I honestly didn’t even remember the cancer part beyond a funny line about rabies.
The video ends with one of my favorite lines ever, and rather than spoil it, I’ll just tell you to go search for it.
It’s beautiful.
It’s also not exactly what I need before bed these days.
So what were my other options?
I briefly considered heroin, but I don’t know where to buy it, I don’t know how to inject it, and if I’m being honest, I have enough PTSD from people sticking needles directly into my veins that I’m going to pass on that hobby.
I already quit drinking bourbon, so all those bottles collecting dust aren’t much help either.
That leaves me with one remaining option besides the various woo-woo suggestions from well-meaning friends who don’t believe in science, medicine, or basically anything resembling common sense.
Video games.
I’d forgotten how perfect video games are before bed.
They’re an escape from reality in a way that takes me back to one of the happiest periods of my life. Today’s games are incredible, but they’re also so much more advanced than the memories that permanently occupy the happiest corner of my brain.
When my brothers and I were little—I think I was seven—my dad had just died, my family was dirt poor, although I didn’t really understand that at the time, and the original Nintendo had just come out.
I didn’t even know what a Nintendo was.
Somehow my mom managed to get one for us for Christmas.
To this day, that still blows my mind.
You see, we were poor. Really poor. Getting a Nintendo back then would’ve been like someone handing you ownership of an NFL franchise for Christmas. It was that ridiculously impossible.
And yet somehow, Mom pulled it off.
For the next year, I don’t think my brothers and I left the room where it lived except for school, food, and the once-a-week mandatory shower our mom insisted three gross little boys take whether we wanted to or not.
We played Super Mario Bros., Top Gun, Section Z, Mike Tyson’s Punch-Out!!, and the original Legend of Zelda until our thumbs probably didn’t have fingerprints left on them.
When I sit down and really think about it, I can’t come up with many happier memories.
So these days, before bed, when my brain wants to wander into places I’d rather it didn’t, I pick up a controller instead.
And it works.
I go to sleep smiling.
I think Tugboat would agree that’s a whole lot better than the alternatives.
So, as I wrap this up, my shoulder still hurts, my clinical trial is going well, and a video game is somehow helping me smile before bed.
Life isn’t too bad…
Even if it’s wildly uncertain right now.
Turns out getting repeatedly killed by a video game is a surprisingly healthy distraction from worrying about everything else.
A Tribute to Denali – https://vimeo.com/122375452