I don’t usually write these updates mid-chemo. If I’m quiet, it’s usually a good sign—like, I’m vertical and life isn’t completely falling apart. But this week? Not one of the good ones.
I’ve made the Houston pilgrimage twice in a single week. First was Tuesday and Wednesday. Then again Saturday morning—chemo at 12:30, back in the car by 7pm. Drove myself home. Total genius move. Nothing like a solo seven-hour road trip after a poison drip to really let the existential dread marinate.
Physically, I felt okay. But mentally? I had way too much time alone to think about all of this.
Let me say this upfront, because it matters: the chemo is working. It’s doing the crucial job of keeping the cancer from spreading. That’s huge. That’s the line in the sand, and right now, it’s holding.
But the tumor itself? Not shrinking. Not growing either—but no visible change. And that part’s frustrating.
Last time I wrote, I mentioned that the tumor might be shrinking, just not in the “right” way. That was based on a conversation or two. Then I got the actual MRI and CT scan reports. And in black-and-white medical speak, they both say: “no significant change.”
So now I’m in that fun gray area between what I thought I was told and what the scans actually say. I’ve sent some notes to my surgeon to get clarification, but so far, silence.
Which left me with 400 miles of highway and a full tank of mental rabbit holes.
The first one: what happens if these next four rounds of chemo don’t budge the tumor? Answer: radiation. And with that, potentially, a colostomy bag—hopefully temporary, but still. That thought alone spun me out for a bit. I don’t handle stuff being stuck to me very well. IVs, glucose monitors, whatever—my brain doesn’t like it. The idea of a bag glued to my side catching waste? That’s a tough one to process.
Then came rabbit hole number two, courtesy of a single sentence in my MRI report: Mesorectal fascia: 2mm.
Translation: the tumor is just two millimeters away from breaking through the rectal wall. That’s not a buffer; that’s a breath. That’s where your thoughts go from, “Okay, we’re managing,” to “Cancer’s about to blow through the wall and set up shop everywhere else while I’m stuck in Houston traffic.”
And even though I know my body hasn’t betrayed me yet—that the chemo is holding the line—I still catch myself wondering: Is this the pain that means it’s spreading? Is this cramp something I should be worried about? Will I know if something breaks loose? Can I bounce back if it does?
There are no clean answers. Just the uncertainty.
And I try not to dwell in that space. But solo drives are where those thoughts multiply.
Eventually, I’ll put on music or an audiobook to drown it out. Buck-ee’s used to be my reward stop—grab something greasy and stupid—but now I can’t eat a single thing there. I miss their beaver nuggets like they were an old friend.
So instead, I blast the music. Grunge from the late ’90s and early 2000s. Nirvana, Stone Temple Pilots, Social Distortion. Or I lean hard into The Gaslight Anthem and all of Brian Fallon’s other bands—The Horrible Crows, his solo stuff. It’s become my mental ripcord. I pull it when the spiral starts.
And tonight, I’m not driving. I’m home. I’m on my couch, chemo pump clipped to me, watching a sunset burn across the West Austin sky. It’s round five, and so far, I feel okay. No nausea. No crash. Just a Diet Coke in my hand (my one allowed per week), a few tacos still on the “approved” list, and a moment of stillness I didn’t expect to get.
People have come out of the woodwork to support me—old friends, distant friends, friends of friends. Some praying, some checking in, some just reading these posts. It all matters.
This week wasn’t great. Mentally, it was rough. But the chemo’s holding. The cancer’s not spreading. And right now, that’s enough.
Next time, I’ll talk more about what chemo actually feels like. A lot of people ask. But tonight, I’ll finish this Diet Coke, sit in this quiet moment, and thank God I’m still here—two millimeters and all.